Women’s Health in IBD

A Comprehensive Guide for Women Living with Crohn’s Disease and Ulcerative Colitis

We are proud to host the Women’s Health in IBD booklet, a comprehensive, evidence-based guide developed by Sarah Gleeson, Advanced Nurse Practitioner in Inflammatory Bowel Disease at Mercy University Hospital, Cork. 

This resource has been created to support women living with IBD by addressing the unique ways that Crohn’s Disease and Ulcerative Colitis can interact with hormonal health, reproductive health, and key life stages. 

Why Women’s Health in IBD Matters

Around half of all people living with IBD are women, and their experiences of the condition can differ significantly due to hormonal influences and life-stage changes. 

Women may notice changes in symptoms:

• Around their menstrual cycle
• During pregnancy or family planning
• Through perimenopause and menopause
• In relation to mental health and wellbeing

This guide has been designed to help women better understand these challenges and feel more confident in managing their health alongside their IBD team.

What This Guide Covers

This booklet provides practical, accessible, and evidence-based information across a wide range of topics relevant to women with IBD.

Menstrual Health and Hormones

Many women report that IBD symptoms can fluctuate during their menstrual cycle, even when their condition is otherwise stable. 

The booklet covers:

• Managing symptoms around your period
• Recognising heavy menstrual bleeding
• The importance of tracking cycles and symptoms
• Iron deficiency and fatigue

Gynaecological Conditions and IBD

Some gynaecological conditions may overlap with or mimic IBD symptoms, including:

• Endometriosis
• Vulval Crohn’s disease
• Fistulas

Understanding these conditions is key to ensuring timely diagnosis and coordinated care between specialists. 

Fertility, Contraception and Family Planning

Women with IBD often have important questions about fertility and pregnancy.

This guide explains:

• Fertility and how it relates to disease activity
• Safe and appropriate contraception options
• Pre-conception planning
• Accessing fertility services in Ireland

Importantly, it highlights that women with IBD in remission generally have similar fertility rates to the general population. 

Pregnancy and IBD

The booklet provides clear, reassuring information on:

• Managing IBD during pregnancy
• Medication safety
• Monitoring and care during pregnancy
• Breastfeeding

A key message is that well-controlled IBD is the most important factor for a healthy pregnancy outcome. 

Menopause and Long-Term Health

Hormonal changes during perimenopause and menopause can impact both IBD symptoms and overall health. 

Topics covered include:

• Managing menopause symptoms
• Hormone Replacement Therapy (HRT)
• Bone health and cardiovascular risk
• Long-term wellbeing

Mental Health, Sexual Health and Quality of Life

Living with IBD can have a significant emotional and psychological impact.

The guide explores:

• Anxiety, depression and emotional wellbeing
• Body image and confidence
• Sexual health and intimacy
• The importance of seeking support
• Women with IBD are more likely to experience mental health challenges, making this an essential part of holistic care. 

Screening, Prevention and Overall Health

Preventative care is a key part of managing IBD.

The booklet provides guidance on:

• Cervical, breast and colorectal cancer screening
• Vaccinations
• Nutritional health
• Bone health and cardiovascular risk
• Regular screening and proactive care can help support long-term health outcomes. 

Supporting Women Across Every Life Stage

This resource recognises that women’s health needs evolve over time and provides guidance for:

• Adolescence and early adulthood
• Reproductive years
• Pregnancy and postnatal care
• Perimenopause and menopause
• Long-term and preventative health

It takes a whole-person approach, acknowledging both the physical and emotional aspects of living with IBD.

           Developed by Experts, Designed for Patients and IBD Clinicians

This booklet reflects the expertise and clinical experience of the IBD team at Mercy University Hospital, Cork, and has been created to ensure women have access to:

• Accurate, up-to-date information
• Practical advice they can use in daily life
• Clear guidance to support shared decision-making

We are honoured to make this important resource available through our website, helping ensure that it is accessible to anyone who may need it.

Download the Full Guide: While this page provides an overview, the full booklet contains detailed, practical guidance and is an invaluable resource for patients, families, and healthcare professionals.

👉 Download the Women’s Health in IBD booklet here:
Women's Health in IBD Booklet

Need Support?

If you would like further information or support:

• Contact Crohn’s & Colitis Ireland
• Speak to your IBD team or GP
• Explore our other resources and support services across the website